Praise the Lord !
As you know our 8 ½ year old son Aaditya was diagnosed with Niemann Pick Type C -1; a rare and progressive cholesterol storage disorder two years ago. In the months that followed Aaditya gradually lost the ability to walk , then to stand, to speak and finally even to eat. He is now fed through a G tube into his stomach.
One of the most frightening symptoms of this disease are the terrible seizures that he got multiple times a day. My wife , our… Continue
Posted on September 28, 2009 at 2:32am — 1 Comment